HB3269 - Relating to the Rita Littlefield Chronic Kidney Disease Centralized Resource Center established within the Health and Human Services Commission.

  89R15417 MPF-D     By: Guillen H.B. No. 3269     Substitute the following for H.B. No. 3269:     By:  VanDeaver C.S.H.B. No. 3269       A BILL TO BE ENTITLED   AN ACT   relating to the Rita Littlefield Chronic Kidney Disease Centralized   Resource Center established within the Health and Human Services   Commission.          BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS:          SECTION 1.  Subtitle D, Title 2, Health and Safety Code, is   amended by adding Chapter 83A to read as follows:   CHAPTER 83A. RITA LITTLEFIELD CHRONIC KIDNEY DISEASE CENTRALIZED   RESOURCE CENTER           Sec.   83A.001.     DEFINITION. In this chapter, "resource   center" means the Rita Littlefield Chronic Kidney Disease   Centralized Resource Center established under this chapter.           Sec.   83A.002.     ESTABLISHMENT OF RESOURCE CENTER. The Rita   Littlefield Chronic Kidney Disease Centralized Resource Center is   established within the commission to serve as a centralized system   through which persons may:                 (1)     obtain information on chronic kidney disease and   related illnesses, including each clinical stage of kidney disease   and end stage renal disease; and                 (2)     receive information on clinical trials and   clinical trial opportunities for chronic kidney disease and related   illnesses.           Sec.   83A.003.     ADMINISTRATION OF RESOURCE CENTER. (a) The   commission shall administer the resource center in accordance with   this chapter.           (b)  The commission shall:                 (1)     structure and operate the resource center in a   manner that provides a comprehensive approach for readily accessing   information on and resources for chronic kidney disease and related   illnesses, including for each clinical stage of kidney disease and   end stage renal disease; and                 (2)     establish, and the resource center shall maintain,   a kidney health clinical trials registry through which patients and   family members of those patients may register to receive   educational information on clinical trials and clinical trial   opportunities based on the clinical stage of a patient's chronic   kidney disease or end stage renal disease.           (c)     The comprehensive approach described by Subsection   (b)(1) must allow individuals to obtain or to directly access   aggregated information on:                 (1)     chronic kidney disease awareness, prevention, and   professional education opportunities, including:                       (A)     awareness campaigns for chronic kidney   disease and related illnesses;                       (B)     information on accessing free screenings for   chronic kidney disease and related illnesses;                       (C)     professional resources and continuing   education opportunities for health care providers who treat   patients with chronic kidney disease or related illnesses;                       (D)     for individuals who register for inclusion in   the kidney health clinical trials registry established under   Subsection (b)(2), information on clinical trials and clinical   trial opportunities for chronic kidney disease and related   illnesses; and                       (E)     information on chronic kidney disease   partners, including chronic kidney disease patient advocates,   dialysis professionals, health care providers, researchers,   manufacturers, and other appropriate persons;                 (2)  patient and family resources, including:                       (A)     educational resources containing general and   specific chronic kidney disease information;                       (B)     resources containing information on chronic   kidney disease prevention and early detection of chronic kidney   disease and related illnesses;                       (C)     nutritional and metabolism information for   individuals with chronic kidney disease and related illnesses; and                       (D)     directories for physicians who specialize in   kidney health; and                 (3)     resources on chronic kidney disease treatment   options and modalities, including:                       (A)     kidney donations and kidney transplantation   initiatives;                       (B)     deceased and living organ donation programs   and initiatives;                       (C)  organ recipient registries;                       (D)     treatment options for chronic kidney disease   and end stage renal disease; and                       (E)     financial assistance for obtaining treatment   for chronic kidney disease or related illnesses.           (d)     The commission shall ensure information provided by the   resource center is available in both English and Spanish.           Sec.   83A.004.     INTERNET WEBSITE. In collaboration with the   Chronic Kidney Disease Task Force established under Chapter 83, the   commission shall publish and maintain on the commission's Internet   website information and resources the resource center provides.           Sec.   83A.005.     GIFTS, GRANTS, AND DONATIONS. The commission   may solicit and accept gifts, grants, and donations from any source   to implement this chapter.          SECTION 2.  This Act takes effect September 1, 2025.